Cognitive, behavioural and social skills in childhood-onset multiple sclerosis and childhood demyelination

Title
Cognitive, behavioural and social skills in childhood-onset multiple sclerosis and childhood demyelination.

Type of intervention
Observational
 
Form of MS
Paediatric MS

Brief summary
Due to technological advances and increased awareness, the numbers of children being diagnosed with multiple sclerosis (MS) are steadily increasing. There are also a significant percentage of adults with MS reporting symptom onset in childhood. Adults with MS commonly experience difficulties in cognition, behaviour and social functioning, however, little is known about how childhood MS affects these skills.

Children aged between 6 and 16 years will be followed for two years from the time of diagnosis, to identify any patterns of difficulty, changes over time, and to establish support needs. This study will measure the impact of childhood MS and demyelination on family, social, cognitive and academic skills. These skills will be measured using several neuropsychological tests and questionnaires. The findings from this study will help to provide the best treatment and management of affected children in the future.

Inclusion criteria

• recent diagnosis with episode of demyelination: ADEM, myelitis, optic neuritis or childhood MS
• aged between 6-16 years of age

Exclusion criteria

• pre-existing, documented developmental or psychiatric disorder
• non-English speaking

Anticipated start date
Aug 2009

Recruitment status
Recruiting

Recruitment contacts
Study Coordinator: Mardee Greenham
Ph. 03 9090 5227
Murdoch Childrens Research Institute, Melbourne

Further details

Region
VIC

Trial results

Last updated: May 2011